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Peaceful Autism Posts

AS and the Media

Witnessing anxiety producing events repetitively on social media, tv etc, over and over, harms us.

Catastrophes, war and disasters have sadly always existed, however the availability of information in the digital era has made them a daily presence in our lives, and we re-live them in our living rooms, bedrooms, and personal space, on a daily basis. The side effects of overindulging in this can be serious for people’s mental wellbeing.

To go to the other extreme and avoid information, or be oblivious to what happens around us, is selfish and foolish, as I believe we must not lose an empathetic heart. Also, access to information is a key to having proper awareness of the world we inhabit, and consequently, affects the choices we make. 

We must be selective however, with what we see and the reason for seeing it, avoiding at all costs gratuitous images that convert human misery into a circus in which we can became willing spectators.

When we view human suffering as entertainment, we join forces in their victimisation, and most importantly, we steal the only thing left to the poor, the vulnerable, and the powerless – their human dignity.   

For some people who witness these tragic events, anguish, fear, and depression can be the immediate response. However, the most serious consequence is the desensitisation to other people’s pain.

This can happen to neurotypicals, but especially to us AS people, who tend to lack filters and who absorb negativity like a sponge. We have difficulty processing information and tend to catastrophise.  

In my case, coverage of miscarriages of justice really upset me.  When atrocities are committed against the innocent and vulnerable, when people consciously and maliciously destroy individual and collective lives with impunity this hurts me deeply.  When I see stories about such events, I am tempted to think that hope is gone, and that everything is doom and gloom and what is the point.

So it is in these moments, when I am sad and overwhelmed, and getting to the point of despondency, that God’s comforting words become my rock and my refuge:

When I said “My foot is slipping,”

Your love, O Lord supported me,

When anxiety was great within me.

Your consolation brought joy to my soul. (Psalm 94)

Do not grieve like the rest of mankind that have, no hope (Thessalonians 4:13-18)

“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.” (Jeremiah 29:11)

I make all things new (Revelation 21:5)

This is the truth that helps me to navigate the world, and I know that He is a promise keeper, and whatever happens with this shell that holds the divine fire is fine with me.

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Working within ourselves

One of the common problems experienced by AS people is lack of self-esteem and shame about feeling different. I must say that I have not been alien to this in different stages of my life.

Some AS people blame themselves for the inability to act as the neurotypicals do, so they became angry with themselves and the whole world. Others try to blend in in a desperate manner, while others retreat to their shells and hide, in order to avoid being seen as faulty goods.

These responses are understandable, however I believe they are not the best strategies to live a fulfilling life.

As I mentioned in another article, the reality is that the neurotypical society is not going to change to accommodate us. I remember an analogy that I read about AS living in a neurotypical led society:

“England is not going to change its official language to accommodate any foreign language speaking population.”

It is also true that although there is a protective legal framework against disability discrimination, legislation alone cannot change what is inside the heart of man.

With this I am saying that we AS People do not have control over what people think or how they react to us (I am not saying that we should not use the existent legal framework to challenge discrimination if needed in in the work place for example).

We can work effectively and produce change in the scope where we can have inference in, and this is in ourselves, and in consequence, in our responses to the external world.

We must work especially hard to not depend on the opinions of others for our happiness and mental wellbeing, because if we allow this, we are accepting a heavy chain for life.

One practical advice I read, and that has stayed with me, is as follows: Do not allow yourself to be elated if somebody thinks or says you are great, or be in the pits of despair if somebody thinks that you are a failure.

How wise is this, as thirst for approval is a recipe for human misery for both AS and neurotypical people alike. How futile it is to depend on other people’s opinions in order to construct a healthy image of ourselves. The tragedy of our times is that we do this.

The innate nature of man is so changeable and unreliable, that what is considered worthy of value in the eyes of people today, tomorrow can be despised. To believe what people think and say about ourselves, and make it the template of our worth, is foolish and dangerous, mainly because it impinges on our autonomy.

People are entitled to their opinions and it is their prerogative, however we should not under any circumstance construct the building of our self-esteem with bricks that belong to somebody else.

I believe it is wise to accept both praise and criticism with the same response; that is with equanimity, and in this manner, to find an emotional balance by avoiding big highs and lows.

What a challenge for everybody! and especially for AS people, as we tend to be people of extremes. So, to find equanimity is a big enterprise, therefore, it is wise to receive any praise and criticism with the same attitude, and what must be set in stone is the unquestionable reality, that in this life everything is transitory; everything is temporal, and nothing stays forever.

When I am trying hard to follow my own advice, I remember St Therese of Avila’s words:

“Let nothing disturb you, let nothing frighten you. All things are passing away: God never changes. Patience obtains all things. Whoever has God lacks nothing; God alone suffices.”

https://aleteia.org/2018/06/05/this-simple-prayer-of-st-teresa-of-avila-can-calm-your-nerves-when-youre-afraid-or-anxious/

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My father is an artist

As an AS person my visual awareness is really heightened, so I perceive colours in an extremely vivid way, and this in turn produces in me a series of strong, emotional and exhilarating responses, so much so, that I feel that I can almost taste them.

It is not only colours but shapes and small details that just jump into my brain without me having a say, and when I see plants, trees, flowers, and all that is embodied perfectly in nature, I can say with conviction that God My Father is an artist who created the world and all that is in it with absolute mastery.

The exquisite work of His hands is ever present around us and we often take it for granted and do not meditate on our smallness before the Great Creator of such wonders. People should see what is around us with childlike eyes and I believe that many AS people are
granted this gift of wonder. God the artist Father has created such beauty that it makes my soul jump for joy. Take the shape of the rose, perfectly formed and in such a range of colours that it is a feast for the eyes. God the artist Father has been so good with me that he allows me to enjoy this extra sensorial experience. I believe that similarly enhanced visual awareness has made some AS people artists in many disciplines, inspired by the creation of our God the artist Father.

In my family, we have a large number of AS people and also, a great number of artists like my earthly father, who is a writer and poet and who has always loved God the artist Father. It was him who guided me towards the adoration, veneration and reverence of the Highest. This Christian spiritual guidance I also received from my lovely mother.

It leaves me speechless to see nature’s perfect tapestry of colours, textures, and shapes, all woven in perfect harmony, and I hear myself saying “wow!” when I realise that it is the Highest who has created them, and that He is my Father, my own heavenly Dad, and that I am his little one. It hurts when people dismiss the ownership of God the artist Father of the wonders he created. They use some scientific explanation or other, as if any scientific explanation would have the capacity to make your heart jump for joy, give peace, and refreshment for your soul, or produce everlasting goodness.

Those futile explanations leave you prone to human vanity and emptiness. They put you in an ever-turning hamster wheel, trying to find explanations without cease. These individuals, deceived by their own intellect, became hollow dried-out husks, without a living soul, searching, always searching, for answers in the wrong places.

As for me, I thank God for the blessing of My Asperger Syndrome, which has made me see the
irrefutable reality of His existence, mastery, and love for us, displayed in His perfect and divine Creation.

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The importance of justice for AS people

A strong sense of justice is a trait that is common among many AS people. In my personal case justice is something that I have aimed for all my life.

This situation has produced a great amount of anguish and pain because we live in a world that is largely the antithesis of fairness and justice and I cannot put up with what I see around me. It is not only the outside world that is guilty of this but also some of my own thoughts and actions.

To explain this, I must elaborate and explain that as an AS person, social interactions is an area where I have a deficit; most people will not notice this as I have learned to act ‘normal’, and I have a template that I use in the dreaded social dance.

However, the inflexibility of my mind has made the use of this template not accurate and it is difficult to calibrate, as it is in the black or white setting most of the time.

My social naivety and high level of empathy have landed me in situations where I have been preyed upon by untruthful individuals. My boundaries have been trampled on, I have been hurt, and taken for a ride.

As a consequence of this I have applied a blank rule to all my social relationships so as to keep myself safe; that is, one strike and you are out. This rule has been extremely effective in purging myself of toxic individuals. However, because my struggle in discriminating between apples and pears is enormous, I have made some wrong judgements and harsh decisions that ended a small number of social relationships.

This is an injustice and it causes me great pain, sorrow and shame. So, I found that I greatly need my trusted family circle to help me to untangle facts, and understand the attitudes, intentions, and actions of other people; to learn to be measured, and at the same time assertively uphold my safety strategies where appropriate.

Given what I see around me, and my own shortcomings and failures, I deeply admire people that transcend human weaknesses, people that act justly, people that leave behind their human fear and that under difficult circumstances do what is right.

A person who has done this and whom I admire for this is Professor Stephen Bolsin, the anaesthetist who blew the whistle of failings in paediatrics heart surgery at Bristol Royal infirmary. After this Professor Bolsin was unable to work in the UK and needed to emigrate to Australia where he is a respected professional.

I admire him because he has shown that you can flourish where you are planted. He has shown that you can produce good fruit and he has shown that you can shine a lamp so that everybody can see, even if it burns your hands. In an interview he stated that he admired his parent’s courage, compassion and honesty and I believe that these same attributes adorn his own character. I admire and respect him because his actions have demonstrated that he loves the Truth. Those that do will be blessed and they will be a blessing for others. Professor Bolsin’s brave conduct has followed the Biblical principle that we all are called to follow; this is zedek, zedek, tirdof (justice, justice shall you pursue). (Deuteronomy 16:20).

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Parents have a voice too

It gave me great sadness to read of the story of an 18-year-old young adult with mild autism who died after being given olanzapine (an antipsychotic drug for schizophrenia and bipolar disorder). He did not have any of those disorders, and his parents expressly forbid the use of olanzapine as they knew of the potential serious harm that it would cause their son. An independent review has since concluded that his death was potentially avoidable.

Oliver McGowan’s parents stated that that their son’s death was down to the arrogance of doctors, and maintained that their decision to not allow the use of the drug was the result of a previous negative reaction to the drug. They also believe that had the antipsychotic drug not been administered to their son, he would still be alive today.

The reason I am writing about this case is because of my own personal experience of dealing with the questionable practices of some health professionals that I dealt with when working with young vulnerable children and their families. What I witnessed in many of my cases was the impotence of the parents as they had unquestionable faith in the system, and this was due to their lacking understanding of their children’s condition and needs.

The following anecdote highlights this:

Arthur was born into a poor but loving household, was intelligent and had a heart of gold, and overall had a warm personality. He also happened to have ADHD, and lived with his devoted single father who had a mild learning difficulty. Arthur was prescribed Ritalin for his everyday use.

I worked with him and his family for about a year, tackling low school achievement, absenteeism and antisocial behaviour prevention, and it’s important to note that Arthur did not have any additional health issues apart from ADHD. The big issue, however, was that his medication was negatively affecting his sleep, and instead of stopping its use, he was given even more medication to help sort this out.

The effects were detrimental.

Not only did Arthur have big changes in his temperature, but he also felt that his head was exploding, and he began to overeat a lot. The medication also led to changes with his personality, the commencement of anger issues, and a lack of emotional control. This then resulted in Arthur joining the wrong crowd outside of school, and he would often be put in danger as a result.

The young boy rejected his medication ferociously, however, taking it was fully enforced at school and by his well-intentioned father at home.

I researched all the information I could on the side effects of Ritalin and organised a meeting with the medical practitioner that diagnosed and did check-ups with the young boy.

I went to the meeting with Arthur and his father and advocated on their behalf.

I was full of hope as the facts were clear: this child, otherwise in a good state of health, was suffering from the effects of a prescribed medication that was clearly harming him. Surely something could be done.

I had gathered a list of his behavioural and physical symptoms that were collated from what I had observed in our regular meetings, notes and input from his school SENCO (who shared my concerns), from his father and most importantly from the child himself.

This was recorded meticulously in written form and matched with what the medical literature stated about the side effects of Ritalin and its dangers.

In the meeting it seemed that our presence was tolerated by the medical practitioner in a patronising way. I was allowed to speak and present the mentioned list. Our concerns were totally ignored. Nothing was refuted nor any rationale explained.

After the meeting the state of things medical wise continued as before.

Arthur’s school attendance plummeted, his behaviour became more challenging and he got himself involved more and more in acts of antisocial behaviour. Eventually he was excluded from mainstream education. He had finally fallen through the net. I understood clearly what impotency feels like.

I remember this boy and his father with affection and sadness. The consequences of this disappointing outcome meant that Arthur’s chances of a healthy, safe and prosperous life were substantially if not totally diminished.

Names and certain details of the case have been changed to protect the young person.

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Asperger syndrome and my faith

I believe that my good God through his son Jesus Christ made me the way I am for a purpose. My Asperger Syndrome make-up has a role to play in what I can and cannot do.

I do not intend to justify my faith or convert anyone. Most of the world knows the Christian doctrine and some people are acquainted with the life of TRUE Christians like St Damian of Molokai, George Muller, St Therese of Avila and St Therese of Lisieux to name a few. Through history and in contemporary times, their way of life is an example of a flame that continues to burn because of the oil of faith in them.


The Christian faith is a very important invitation to everyone, regardless of race, social status, or lives riddled with mistakes. As it is an invitation, it is up to the individual to accept it or not.
This personal choice is, as the word says, personal, and as such nobody should impinge on it.
My intention in this blog, is to tell of, in all honesty, the help and comfort that I receive from my good God as regards my anxiety and existential anguish, an anguish that is heightened by my Asperger Syndrome.

The main believe that helps me is that my good God knows me and loves me the way I am. He knows me like nobody does, he guides me when I am lost and confused, corrects me with loving discipline, and sooths me with a supernatural love.

About this love of which I am speaking; it is real and it is not easy to explain. The closest that I can come to explain it, is with three words: warmth, calm and peace, all rolled into one.

My good God loves me. However, I do not always respond in love to Him, like on occasions when doubt and fear engulf me, or on the many occasions when I do not follow his instructions and I become unforgiving, angry, judgemental of other people, and harbour jealousy and resentment in my heart. But worst of all, is when I lose trust in Him.

In spite of all of this my good God does not give up on me, and time after time, waits that I come back to Him and say my millionth sorry, and my good God forgives me and makes things better for the millionth time.

Truly I believe that in this earthy reality human nature has the potential to run havoc. No one
escapes this in one way or another. We all have an imprint that sways us to think wrong, feel wrong, and act wrong.

As I am part of this flawed humanity, I know that not even my dearest family members or friends can change this. What then can be done? Fall in a pit of despair and accept that man is doomed? No, that cannot be.


When I was a child, I was told of a way to transcend this earthly misery, a way out: Jesus, and since then, I have tried to follow that way. I say try because as luminous as is ‘The Way’, too many times I have ignored it and have gone my own way. As a consequence of this, I have fallen and suffered harm, and worst of all done harm to others.

To have conversations with my good God and tell him that I love him and need him is the key to my spiritual and mental wellbeing. I do not know what I can do without this moment of prayer in my life, as I am still riddled with anxiety. People will ask why does she still suffer from anxiety if she believes in her good God?

The truth is that I am still a work in progress, a spiritual infant aiming to be a true Christian one day, yet I am absolute certain that Jesus is the way to find real happiness and peace, a peace that the world can never give.

I see what the world gives and I decided that I do not like or want any of it; lust, greed for riches, prestige, power and over inflated self-love and a lack of purity disguised as sexual diversity and equality. This will all give short-lived satisfaction, and it will deplete the soul of light, leading to self-destruction.


For me the formula to be happy is clear. It is called the ten commandments, which are encapsulated in: “Love your God with all your heart with all your soul and with all your mind” and secondly, “love your neighbour as yourself”.

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Aspergers and toxic individuals

My aim when writing this article isn’t to make people think that every other person, we meet could be a potentially dangerous and toxic individual – most people are perfectly fine and we all have varying degrees of positive and negative traits. I just want to highlight the dangers presented by a very small percentage of the population.

AS people are at particular danger of being caught in the hands of toxic individuals that use subtle manipulation to keep a tight rope of control around them.  Emotional predators feed on the naivety the empathy and caring nature of individuals, neurotypicals, and AS alike. However due to their particular unique lack of savviness it is my belief that AS people are in increased danger of falling prey to toxic predators. 

These predators use and discard people at their own pleasure and can leave their victims emotionally, psychologically and economically destroyed. 

There is increasing awareness of the existence of these individuals, People are starting to believe what seemed unthinkable – the existence of human beings devoid of conscience and empathy who not only do not care about others, but who thrive and get their boost from other people’s pain.

When I am talking of ‘toxic individuals‘, I am referring to psychopaths’ sociopaths and malignant narcissists.

There is a good body of scientific research about these kinds of individuals and well-documented information about how they operate. Hervey M. Cleckley and Robert Hare being leading authorities in the field.

Also, and no less important are the testimonials of victims of these individuals that help us to understand a ruthless and devastating kind of abuse.

What are their motivations what is their modus operandi? Do they act alone.

We do not need to study a psychology degree to understand the most important basics to protect our loved ones and ourselves  

First of all, we need to know that these toxic individuals are around us in the different spheres of our lives this is workplace home and our circle of friends.

Most toxic people are not the prototypical criminals that are so popular in people’s perceptions. Contrary to general belief, these people are attractive, magnetic and well-groomed individuals that take care to cultivate an image as the kindest and most helpful human beings.

Physical aggression is not the preferred tool (although I am not saying that they do not use it). To the outside world they will present a spotless clean image. They create a persona that is blameless and they will do anything to keep this image going as long as they can.

It is close proximity that produces the most dangerous scenarios and many times people are involved in situations where they cannot completely avoid these people because of family ties, job commitments etc.

So, it is fundamental that we are aware and literate of what constitutes healthy relationships and that we learn to spot conduct that does not fit a healthy pattern.

We need to learn to spot red flags that toxic individuals display in violation of the healthy rules of human engagement (I believe that we should teach this to children and young people in schools in an appropriate pedagogic way as this is a protective tool that will last a life time).

These people have an ability to find their prospective victim’s weakest spots to perfection and use this knowledge to lure their victims into a subtle, mental and emotional control. it is widely accepted that they can sell ice to the Eskimos.

They have poor impulse control, lack of empathy and callousness, and a grandiose self-image of themselves. They do not believe they are doing something wrong when hurting and abusing people.

They see people as objects to be used and discarded. They feel special and unique and they do not feel remorse about this. Most experts believe that they cannot change, and that they can fake repentance and pretend they have changed, and they can fool anyone.   

It is important that when neurotypicals and AS people, especially the young, are gaining independence and starting to form friendships and romantic relationships and even job connections, they, their families and carers, must be aware of any red flags that point towards a toxic abuse situation that they could be involved in.

The first question that victims ask is “why me?”, as their self-esteem is so low through the abuse from the toxic individual that they think that they are worthless and without any value and this is why they have been targeted.

The opposite is true, victims must understand that toxic individuals can choose people of great virtue and who are full of empathy. They are singled out for their great capacity of caring altruistic fairness. They are people with a rich internal life, something that the toxic individual does not have and envies deeply as they themselves have a shallow emotional life.

Some experts believe that people targeted by toxic individuals have innate insecurities that are discovered by the toxic person. 

It is these emphatic natures that can be used against their victims as the toxic individuals will use this to trap the victim and keep control over them with lies and false pretences.

The toxic individual, aware of the empathy of the victim, starts with a pretence of goodness, altruism and charity and victimises themselves, inventing or exaggerating hardships in their lives.

They are pathological liars and extremely good at this so the empath falls into a trap as the rescuer of this ‘poor human being’. 

They are so good at this that they do not always need to ask for what they want as they throw out their hook and line and the empath gives the toxic individual what they want on a silver plate. 

Soon they will start the parasitic relationship which could be for money, resources, time; or for young people in the university setting, it could be asking the empath to do all their academic work, using the charming friendship card or aggressive approach.

It is fundamental that before going to university, neurotypicals and AS young people are coached about healthy boundaries, spotting toxic behaviours and are encouraged to share concerns with loved ones.  

The most dangerous scenario is that the empath may not realise that abuse is taking place and that he gets to accept this situation as normal. 

Isolation is the other tool the toxic people use in order to put distance, emotional or geographical, or both, between the empath and their support mechanism. This can be friends and family etc, so the abuse cannot be witnessed and the person will not have any sounding board to validate his depredation or ask for help.

In isolation, the toxic individual can use the cruellest of tools in their arsenal – this is gas lighting.  With gas lighting the toxic individual will use a technique that makes the empath doubt his perception of reality and doubt her/his own mental wellbeing.

These people will not respect your boundaries. They have a sense of entitlement that is extreme as what they want is the only important consideration, and they feel that they can take anything from the empath, money, time, connections, anything.

They are master manipulators and know who can help them to reach their ends in any area they are involved in, from the manager of an office who takes credit for her employer’s work and starts a campaign of gossip and slander, forcing their victim to resign or get sick leave, to the cleaning lady that manages to trick their victim into ‘helping’ with their load on an unfair, regular and constant basis. 

In the workplace the fact that the abusers manage to thrive is compounded by people around them who witness the toxic behaviour and look the other way in order to avoid confrontation; this enables the abuser to continue with their negative conduct with total impunity. Witnesses are silenced   through fear, some kind of control, or by being charmed by the toxic individual. Many times, they become instruments of the toxic individual and join in the depredation. This phenomenon is called mobbing.

They are artists of disguise who mimic emotions like empathy and they can put on exceptional performances, Experts agree that many people fall for these pretences, in fact, they can even convince experienced psychologists and other mental health professionals.

They are also artists at charm offensives and at mirroring so they will read your needs, wants, and preferences and they will pretend that they like the same things. 

It is well known that people, when meeting with these toxic individuals, are in awe of their similarities in tastes and outlook of life, when in fact what all they have done is an exercise of cut and paste.

In the romantic sphere people think that they have found THE ONE and feel intoxicated with their kindness, love and details such as flowers, gifts, poems, songs. This is done in an extreme and over intense way.

This is in fact the initial hooking stage called ‘idealisation’ that is only a preamble to the abuse that will take place. One give away many experts believe is the rapidity in which this relationship develops. They want to start and seal this relationship at a fast speed before their lies and inconsistencies are made evident.

So, when when a relationship develops too fast – beware (in social relations time is important to build solid and healthy engagement). So, before committing your inmost feelings, thoughts, dreams, freedoms, and economical resources into the hands of an ‘amazing individual’ that you have just met, think, pause, and ask yourself, “Why is she/he going so fast?”

The toxic individual is wearing a mask and there is nothing real behind it. When the mask slips (which can take years) the most painful part for the empath involved in this relationship, is to come to terms with the fact that the person that they thought was their friend, wife or husband, did not truly exist, but was a carefully constructed lie.

According to experts, there are many positive interventions that people who are caught in toxic relationships can use to regain their freedom. The number one is going non-contact. That is, cut all ties with these people and when this is not possible, there are other options that can be given by a professional expert in these kinds of toxic relationships.

Professional help is needed because what has been created is a trauma bond, similar to the Stockholm Syndrome, and a powerful addiction.

This can entail a painful process of healing as the aftermath of this type of abuse needs professional help and a caring, loving and solid support group (well-informed about toxic abuse).         

This reality can be uncomfortable to accept but we cannot live in a bubble. Being aware of the existence of these toxic people and how they operate is a great protective step.

We must choose the people with whom we engage wisely. We must avoid rushing into our relationships and we must take the time to know people well.

We must make a conscientious pledge to ourselves to choose people that respect our boundaries, and to choose people that do not need to be rescued or that promise to rescue us.

Above all we must never allow toxic people to steal our peace, happiness and joy, and most importantly, our God given gift of autonomy.

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Accepting the Asperger diagnosis

I sympathise with children and young people when they find it hard to accept their diagnosis of AS.

Being a young person with AS and living in a society where the majority of its members are neurotypicals is not an easy task. Mainly because young people, including some AS, feel the need to belong to a peer group and not to be the odd one out; and also, because of the lack of education and understanding that the majority of young neurotypicals have regarding AS.

As I was diagnosed with AS in my late forties, I already have a series of strategies to circumnavigate the jungle of social relationships, and most importantly I already thickened my skin to a certain degree. This may not be the case for young AS nowadays who have just received their diagnosis.

A diagnosis, although providing an explanation to some sui generis patterns of behaviour and potentially opening the door for professional support, can be a heavy blow that must not be underestimated because what must be accepted is enormous and unsettling.

I write below a summary of some of the realities that we must accept. I will elaborate longer on the part of emotions as it has the most utter importance. There are many more however, and for the brevity of the blog I condensed them into the following points:

· We need to accept that a person with AS always will have AS. Although experts and authors agree that positive interventions and the right environment can help AS people achieve their top potential and live fulfilling lives, there is not such a thing as a cure for AS because it is not an illness

· Society will rarely accommodate our particular needs. Many of our needs are not obvious and a majoritarian neurotypical society use the same yardstick for everybody

· We need to accept that in order to be accepted in friendships groups, the job market, cultural circles etc. we need to mimic certain social conventions even if we see them as superfluous, insincere and time wasting. An example of this is making small talk

· When people meet us for the first time and know that we have AS they can make judgements and assumption’s based on the level of their knowledge and understanding of AS. For some we can be considered faulty goods or mentally deficient, for others we can be seen as endowed with genius abilities. These two scenarios are unsettling to us as all we want is to be perceived as and treated equally

From personal experience I can say that we can annoy people and get into trouble despite the best intentions of our hearts and get baffled as to why this is so.

To explain this, I will use an analogy that I have heard about salt. In cooking I believe there is not another simple ingredient with the potential to change the flavour of a dish quite like salt. If we underuse it the food becomes bland and if we overuse it, it is inedible and we throw the food away.

If in place of salt we put emotions, most neurotypicals would have the knack of knowing how to manage them internally and in their external expression. So, say if somebody close to them is upset, they will express their emotions accordingly to the situation. This is they will acknowledge the person suffering, express their empathy, and give that person some space. (even if they don’t harbour true sincerity or empathy).

What is most important is that they will know the right timing and the right person to whom to engage in this emotional interchange in most of the cases. Contrary to general belief AS people have

empathy and this can be enhanced to an extremely high level. However, they do not know how to manage it.

The issue here is how to calibrate this caring nature and the array of emotions that we absorb without filters, how to understand them, how to name them, how to process them, and the trickiest part, how to express them according to the situation and in a way that is not too bland nor too ‘salty’.

Suffice to say, some of us have got this wrong and have got into conflict, as in for example when we offer unwanted support and help for some people that want their own space and are flabbergasted at the intensity of our emphatic nature. As a result, they ostracise us by distancing themselves from us. The sad thing is that some AS people, once rebuked for their over saltiness, will as a protective behaviour use the bland approach, or perhaps hide themselves in their shells and withdraw emotionally, even in situations where their support could have been wanted or even necessary.

I believe that we have a calling to be ‘the salt of the earth’ and therefore we should always try to use one of our greatest attributes – our great capacity of care.

I believe that emotional literacy is indispensable, as this will foster self-awareness that can lead to more clarity in our social exchanges, and this in turn can help us to avoid committing too many faux pas in the way we interact with other people in what is for AS individuals, the most delicate sphere of human interaction.

Our support system, as in our family members, school mentors or professionals, can point us in the right direction. Even so, it is not an easy road, and we can still make mistakes. however, we must not dismay or sit in a dark hole of despair. We must bounce back and try again and again and again.

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Anxiety and bouncing back

There is hope, not all is lost, yes, after many episodes of misery that we subjected our loved ones to and to ourselves, things can be mended… the only way is up.

I know this is true as I just subjected my family to one more dreadful episode of unreasonable behaviour due to my anxiety – fortunately all is fine now.

In this blog I will dissect what happened, what aggravated the situation and what helped me to reach the calm place where I am now. I’m hoping that this can be of encouragement to somebody.

To start, I had a challenging morning. A very important family decision had been taken without any of my input and I was told about it in a blunt manner. I became anxious.

My husband told me that he was considering taking some medication for a suspected illness (not confirmed by tests) despite some well-known negative side effects.

When I forcefully voiced my concerns, he told me that it was his decision and there was nothing I could do or say to change his mind… more anxiety. Despite this, I went to the pharmacy with my husband to collect his medicine. My mind was overwhelmed with the knowledge of the pernicious side effects of this medication and I was full of tension and anxiety.

At the moment of payment, a serious looking shop assistant apparently joked with me (I still do not see it as a joke) and I was offended. As a result, I responded with an angry stare.

I was scolded by my husband who told me off for being so rude. It hurt that despite his knowledge of AS he did not understand at that point that I had not perceived the shop attendant’s words as a joke but as an insult. More anxiety.

Next, I visited a supermarket, where people were not respecting social distance, they did not wear gloves or masks. Fear and mental tiredness crept in and a feeling of fog filled my brain.

Going home I took ages disinfecting the food bought in the supermarket with antibacterial wipes. A conflict due to domestic chores arose and to top this my dear daughter told me nicely that she wanted to leave home as she needed her independence.

I exploded and became totally unreasonable. Naturally she stated that my anxiety was another reason for her to leave. On top of anxiety, a sense of failure for not reacting wisely engulfed me.

I became sad, restless and tried to distract myself with my special interest of the moment, watching videos of royalty, but this did not soothe me. I was a bag full of anxiety.

My husband came kindly to ask me how I was and I attacked him with verbal fireworks and all kinds of expletives. I became unreasonable and extremely hurtful and angry.

An ugly episode ensued and I can see how he became flabbergasted. He was impotent to help me as the intensity of my anxiety was extreme.

I was sinking into desperation, my anguish and sense of failure as a mother, as a wife, as a home maker, were only equal to my guilt in being unable to be the solid and calm human being that I desperately wanted to be.

I felt sorry, especially for my children, as I always want to provide them with safety and certainty and to be a good role model. I want to be the one that protects them and gives them sound advice and

not the other way round. But in moments like those that I described I become so inflexible and it’s like I reverse in age and maturity.

The feeling of failure and anguish is powerful and this is enhanced by the conviction at each crisis moment that everything is lost, there is no way back, nothing is going to be the same again, this is the end of the road.

To neurotypicals this can be seen as an overreaction, but for AS people this gear-up in intensity is automatic.

What helps me to recover?

Prayer.

The first thing was prayer. As the crisis deepened, I left my husband and daughter, went to a quiet place and knelt down and asked for Jesus’ help. I could feel a dark fog leaving my head and I could sense that everything would be all right. I did not know how, but I just felt it.

After praying I went back to my husband and daughter and was received in a calm manner. they avoided asking the question, “Are you all right?”. That was not necessary.

Knowledge.

My daughter who is very insightful and knows about AS acted in a way that was so beneficial and helpful. She just let me be. She was calm and validated my feelings of anguish as she said that I have some fears that are real to me even if they are not real to everyone else.

This alone was a cold flannel on a feverish brow. My daughter also realised that since the morning I had had some negative stimulation and pointed that out to my husband.

Knowing about AS is indispensable for us and our family’s sanity, only when we know this can we start to understand ourselves and others.

Self-awareness is important. Just to know our physical signs of anxiety, like shortness of breath, and psychological ones like becoming increasingly rigid and inflexible in one’s thoughts. If we recognise these signs we can stop and go to a quiet and safe place and unwind.

Time.

In my personal experience, when I am in the midst of anxiety that is producing anguish, I try to remember that this has happened before and that it will end.

It is fundamental that I inscribe in my mind the mantra ‘THIS WILL PASS’, and to go to a place like my garden or my room where I feel safe.

What went wrong.

Thinking in retrospect, everything was too much. Too much stimulation, too many people, avoidable conflict. As my mental and emotional energy are not infinite (AS people spend them faster than neurotypicals) I need to spend them wisely.

Going to the pharmacy and supermarket was a mistake. But once there I should not have allowed myself to be so overwhelmed with all that was around me, probably I could have avoided what was not indispensable.

To have a quiet moment for myself in solitude during the day, probably in my garden, could have keep me inside my limits.

I should have been included in the important decision, and importantly, it should have been talked about in a more AS friendly way, avoiding the surprise factor.

Reflecting on what I have shared, I want to say to my fellow Aspies that if anxiety-motivated incidents happen in the future. We must act as surfers. We must ride the wave with courage and get to the safe shores of serenity and peace, holding on to the conviction that we are wonderfully made and unique.

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Are students with Asperger syndrome in mainstream education short changed?

The premise that an AS student in mainstream education has the right to an equal education is a generally accepted belief. Unfortunately, what I have observed while working with AS children and young people in both special and mainstream schools in the UK for around 19 years, is that this is not the case. This has given me the conviction that AS students are short changed.

I realize that some parents do not want their child attending a special school for many reasons, one of the most common is to avoid labelling the child as ‘special needs’. Even if they believe that an AS school is the right provision for their child, the number of specialised AS schools is extremely low which leaves many parents and carers of AS students unable to access one.

The public’s general assumption is that sending AS students into mainstream education is a great stride in their fight for equality. In this blog I will concentrate on what I have observed in mainstream schools and how the vast majority of mainstream schools that I worked in did not offer AS students an effective provision for their unique needs.

Too many times my work as an LSA was limited to what was essentially babysitting. What were clearly able students were not provided with differentiated work and were given filler activities far below their capacities. On the other end of the spectrum, I also worked with students who were unable to reach the basics of the curriculum.

As a consequence, I saw how boredom and frustration transformed into challenging behaviour, ending in sanctions and many times exclusions. These students were stunted, lagging behind the class even if they were endowed with intellectual gifts. On top of this they were losing a precious window of opportunity for specialist education at an age where the chances of success of achieving their milestones were at their highest.

I have lost count of the number of times that I was ordered to cajole students back into a classroom after they had run out to hide in order to avoid what was clearly not the right place for them. A few common triggers that caused real suffering included classroom noise, disruption from other students with different special educational and behavioural needs, sudden changes of routine, and sensory overload.

It is true that in some schools there were accommodations that are helpful, like allowing the student to have a desk in a corner of the classroom (mainly in primary school) or providing the student with a five-minute card so they can leave the classroom to unwind when needed. Nonetheless these positive interventions pale in comparison with the high amount of unmet needs and lack of appropriate interventions for special educational needs and disability (SEND) students. It is also true also that some schools allowed for the students that could not cope in class to work in a private room or in a SEND POD, however this was not always allowed by teachers and randomly implemented. I found also with some students that they can get used to the safety and calmness of the POD room and it was a struggle to take them back to the classroom.

Autistic units attached to the mainstream school worked well up to a point in that the students were not overly exposed to the big school. However once again, the lack of investment in proper staff training was evident, which along with low academic expectations converted this into more of a day-care centre.

The main effort of many schools that I have worked in has been to keep AS students inside the classroom. During my performance reviews this was a key indicator of my effective performance. The student’s academic performance was secondary. In fact, with few exceptions, AS students are not given high expectations of achieving well academically, and many leave the secondary provision with low or no qualifications.

It is hard for AS students to be part of a mainstream school; I have seen the tears and panic when an AS student is ordered back to an environment that was clearly not suited for them.

Take the example of a young girl who I needed to spend 10 to 15 minutes with outside the classroom door, convincing her that she was going to be okay inside the place that she feared most. I vividly remember her moving one step at the time towards the door, opening the door and suddenly going back and sitting on the floor in the corridor crying. It helped if one special friend was there, however this did not always work, and more often than not, we were unable to finish the lesson as so much time was lost.

Anxiety in AS students was a common denominator in all the schools I worked in and I believe that the fact that this is not seriously and vigorously addressed is neglectful.

One consequence of this neglectful state of affairs is exclusion, for example, when the AS student lashes out at other students, members of staff or school property. There were too many lost opportunities to help the students, and a lack of in-house therapies, absence of mentors and negligible external agency interventions.

AS students are prone to meltdowns when their coping strategies (if there are any) fail, so this can make the student a pariah and a target of bullies. I have witnessed mental and physical bullying however the most pernicious kind has been when bullies use low level intensity that is so difficult to detect except by their victims. This is when the bully identifies what triggers AS students and their anger or anxiety responses. They wait for an explosion and then they retreat and no one notices except the bullied student, who when sanctioned, complains to a member of staff and is often not believed as there is no evidence, or they are deemed too ‘sensitive’.

If bullies are identified, sanctions are too weak and sometimes not followed through. The schools antibullying policies, from what I have observed are not a strong enough deterrent.

The fact that most AS students do not present an obvious disability, plays against them so they are less understood and labelled rude, disruptive, or weird when they try to fit into an alien environment that has its unique codes of communication and expectations. I have heard a SENCO blame a bullied AS student saying that he brought problems on himself for being ‘strange’.

We have market driven schools that affect the most vulnerable in society, amongst them AS students. This system is producing a demoralised demotivated and exhausted generation of dispensable professionals of education where short-term contracts are common practice and schools have a low retention rate. This workforce is stretched thin and lacks necessary tools and support, to the point that they are often forced to overlook best practice.

In spite of this I have seen great teachers and support staff who clearly cared for their AS students. Their positive practice had to do with their personal qualities, emotional intelligence and genuine interest in the wellbeing of the students.

I have seen these professionals, for whom their work was a vocation, display huge amounts of patience, enthusiasm and empathy in their dealings with the student. Going the extra mile sometimes without the acknowledgment or support from senior staff.

They created that unquantifiable good that is ‘trust’ in their working relationship with AS students and their careers and parents. when I think of them ‘salt of the earth’ comes to mind.

It is a well-known fact that most Teachers in big mainstream primary and secondary schools are overwhelmed with big classes, they have a curriculum to follow and implement and sometimes they need to cater for a variety of SEND needs as complex as they are dissimilar.

SEND students (AS included) are not well served by this because even when teachers are aware of the limitation and needs of AS students, teachers often feel ill-equipped and in need of additional support, training and more time for planning; we should remember that mainstream teachers are specialists in their subjects and not in special educational needs.

This is challenging for all involved: teachers, SEND students and the whole class, who many times slow down their learning as a result of this. I believe this is a money saving policy masquerading as equality rights for SEND students.

A big problem that I observed in mainstream schools for the AS student is with friendships as it is hard for them to make and maintain real friendships. A real danger is their potential to get manipulated as they are socially naïve; in one case a student was tricked into shoplifting by his ‘friends’ and there are countless cases with similar stories. The fact that they are often desperate to make friends makes them easy prey.

How parents were treated if they complained with school authorities about their children’s provision was telling. I witnessed how the most persistent parents and those who were more assertive and articulate were listened to (those who shout loudest are the ones heard).

Reflecting on what I have seen, I believe that every parent or carer of AS students must educate themselves about AS and the way the UK educational system currently caters for AS children and young people. Neglecting this could leave them without an important tool to fight for the rights of their children.

I suggest that you read the Special education needs and disabilities First Report of Session 2019 created by the House of Commons Education Committee I would like to share a phrase found in this report that I totally agree with:

“During our inquiry we met young people who told us about their experiences as young

people with special educational needs and disabilities. We were encouraged by their

confidence, determination and humour. But we were ultimately saddened by their

experiences. This generation is being let down——the reforms have not done enough to

join the dots, to bring people together and to create opportunities for all young people

to thrive in adulthood.”

https://publications.parliament.uk/pa/cm201919/cmselect/cmeduc/20/20.pdf

https://www.goodschoolsguide.co.uk/special-educational-needs/learning/mainstream-schools-for-special-needs https://nasen.org.uk/uploads/assets/e8aa4e1d-451b-4738-b3aaa0e6954a926f/SEND-Code-of-practice.pdf

https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/398815/SEND_Code_of_Practice_January_2015.pdf

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